Welcome to the Foundation for Children with Microcephaly! We
have created this website to help and inform parents and
families of children who have been diagnosed with
Microcephaly, Lissencephaly, Polymicrogyria and other closely
related neurological disorders.
If your child has just been diagnosed, you have a million
questions and thoughts running through your head. It gets
really frustrating when no one has the answers to any of your
questions. We are here to help! We can put you in contact
with other parents that have been or are going through the
same things you are. Click here to contact a parent now. Let's
start with the basics...
Microcephaly means small (micro) head (cephaly). It is a
neurological disorder where the head circumference is less than
it should normally be in an infant or a child. The condition can
be present at birth or develop within the first few years of life.
Most parents do not know why their child has Microcephaly &
may never know the cause - even with advanced genetic
testing. The most difficult thing that we have found is each and
every case of Microcephaly is different. Some children have
mild to moderate delays, while others have severe delays. Most
of the time there is no way to know how your child diagnosed
with Microcephaly will develop. In some cases delays are
apparent right away, and in others delays won't show up until
after a year old. So the only thing that we, as parents, can do is
just try to help our child progress, enjoy every moment with your
child and take life day by day - trying not to worry about all of
the unanswered questions (which is much easier said than
done).
have created this website to help and inform parents and
families of children who have been diagnosed with
Microcephaly, Lissencephaly, Polymicrogyria and other closely
related neurological disorders.
If your child has just been diagnosed, you have a million
questions and thoughts running through your head. It gets
really frustrating when no one has the answers to any of your
questions. We are here to help! We can put you in contact
with other parents that have been or are going through the
same things you are. Click here to contact a parent now. Let's
start with the basics...
Microcephaly means small (micro) head (cephaly). It is a
neurological disorder where the head circumference is less than
it should normally be in an infant or a child. The condition can
be present at birth or develop within the first few years of life.
Most parents do not know why their child has Microcephaly &
may never know the cause - even with advanced genetic
testing. The most difficult thing that we have found is each and
every case of Microcephaly is different. Some children have
mild to moderate delays, while others have severe delays. Most
of the time there is no way to know how your child diagnosed
with Microcephaly will develop. In some cases delays are
apparent right away, and in others delays won't show up until
after a year old. So the only thing that we, as parents, can do is
just try to help our child progress, enjoy every moment with your
child and take life day by day - trying not to worry about all of
the unanswered questions (which is much easier said than
done).
Join our FCM Group today! A place for all of us to go for support, to keep in
touch and meet other families near you! Enter your email below to get
started!
touch and meet other families near you! Enter your email below to get
started!
2009 Convention Pictures are HERE!
We are currently searching for families who have children diagnosed with
Microcephaly that live in the following states: CT - MA - NH - RI - ME
If you live in one of the above states and want to be connected with a family
email us today at help@childrenwithmicro.org
We are also searching for families who have children diagnosed with
Microcephaly with Micro-deletion on chromosome 17.
Convention shirts are still available! Our online store is currently under
construction! Get your convention t-shirt today by sending an email to
convention@childrenwithmicro.org
We now help children with many different neurological disorders, as well as,
continue to help children diagnosed with microcephaly! Some of the new
disorders we now support are polymicrogyria and lissencephaly. More
information will be coming soon!
Sign up to receive FCM's quarterly newsletter! Send an email to
newsletter@childrenwithmicro.org and title the subject line "subscribe"!
Click here to see our current newsletter!
FCM is a 501(c)(3) nonprofit organization and public charity! Contributions
are tax deductible! Donate Today and help a child in need!
We are always looking for state representatives and volunteers! Email
jenni@childrenwithmicro.org if you are interested in raising awareness of
Microcephaly, holding fundraisers or parent-to-parent support.
We are currently searching for families who have children diagnosed with
Microcephaly that live in the following states: CT - MA - NH - RI - ME
If you live in one of the above states and want to be connected with a family
email us today at help@childrenwithmicro.org
We are also searching for families who have children diagnosed with
Microcephaly with Micro-deletion on chromosome 17.
Convention shirts are still available! Our online store is currently under
construction! Get your convention t-shirt today by sending an email to
convention@childrenwithmicro.org
We now help children with many different neurological disorders, as well as,
continue to help children diagnosed with microcephaly! Some of the new
disorders we now support are polymicrogyria and lissencephaly. More
information will be coming soon!
Sign up to receive FCM's quarterly newsletter! Send an email to
newsletter@childrenwithmicro.org and title the subject line "subscribe"!
Click here to see our current newsletter!
FCM is a 501(c)(3) nonprofit organization and public charity! Contributions
are tax deductible! Donate Today and help a child in need!
We are always looking for state representatives and volunteers! Email
jenni@childrenwithmicro.org if you are interested in raising awareness of
Microcephaly, holding fundraisers or parent-to-parent support.
Disclaimer: The information provided on this website is to inform and help new parents cope with the sudden, unexpected change in their life. The
information contained on this site is not intended to replace information you have received from doctors or other health professionals. Though there are
many facts on this website, there are also many opinions. We are not doctors, we are parents with children diagnosed with Microcephaly.
information contained on this site is not intended to replace information you have received from doctors or other health professionals. Though there are
many facts on this website, there are also many opinions. We are not doctors, we are parents with children diagnosed with Microcephaly.
"Little Help... BIG Difference" |
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| Do you want to help children diagnosed with microcephaly by holding a fundraising event? Send an email to help@childrenwithmicro.org today to find out how you can make a difference in the lives of children diagnosed with microcephaly! |
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